To keep my
promise to let you know what I am doing, here is the latest. There is a lot
going on in my dispute with Parkinson’s. I intend to beat that little bastard
of a disease if it kills me; so even
when I am exhausted, I keep pushing so that I can feel l will never give in to PD.
Never.
I saw my new
neurologist just 2 weeks ago and we hit the ground running. I have a consultation
with a deep brain stimulation specialist tomorrow afternoon. I am in a photo
exhibit with 14 other photographers in 2 days. I need to get 3 photos from the
lab in Midtown to the gallery in Tribeca. One of the photos is 5 feet wide.
Right now, I am waiting for the lab to call. Oh…and I am writing this blog. And
I am entering 2 calls for art from a lower eastside gallery looking for exhibit
stuff to show and sell. That is enough change for a couple of weeks.
Not going to
happen; instead, yesterday I met my new physical therapist. She called the night
before and from her voice I was expecting a 50 ish woman with a rigid approach. There is nothing wrong with that. I like experienced people. Then who shows up is a 33 year old intelligent, charming, pleasant yet mature young lady who sings along with the music I play in my
gym despite the fact that she could be my
granddaughter (almost). Makes me feel young (almost). To top it off, she is experienced
with treating both Parkinson’s AND neck, back and shoulder problems. She is now part of my team. Beating Parkinson's takes a team. Remember that. Based on what I have learned from her already, I believe every Parkinson's patient must have a physical therapist on her/his team.
She told me
that I was not normal (but I knew that). She said normal for someone with PD is
to not exercise and that it was hard to get PD patients to exercise, even when they know how important and effective it is. When I told her about my fitness program to combat PD, I could tell that she was amused.
She critiqued
my exercise routine and to my surprise found numerous deficiencies and problems, some of which
could be contributing to my pain in the neck. I can’t wait to get rid of this pain.
I would rather be pain in the neck than have one. My wife could argue that with
half of that statement, I am already successful.
Please join me at the reception for my group photography exhibit Thursday (this week) Sept. 20 6 - 9 PM at One Art Space, 23 Warren Street, at Church Street, a few blocks North of the World Trade Center.
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