Wednesday, October 31, 2018

My Rush Hour Revelation


Remember back when I wrote about my bad attitude? I still have it. I think. You noticed the hesitation? This is why. So I was heading to Grand Central by New York City subway to catch a Metro North train to travel upstate to visit my son. I needed a lot of camera equipment because he and I would be searching out some interesting venues to photo.  Altogether, my camera case on wheels weighed about 25 pounds. I also carried an overnight bag. And when I travel on public transportation, I use a cane just as a precaution in crowded stairways, platforms, etc. Getting knocked down is not only embarrassing; it can kill you. The only mistake I made was travelling at rush hour, which can also kill you.

My first hint was before I even entered the subway stairs near my house when a woman who was coming towards me with a crazed look had the option of waiting a split second to allow me to pass through a narrow sidewalk aisle or pushing forward, which required that she put her shoulder in my chest, drive like a fullback and attempt to push me out of her impatient way. Luckily, I anticipated her actions and braced for the impact. We collided hard. She bounced off my chest and simply continued on her way as though it was necessary and part of her routine to intentionally push into a man walking with a cane and heavy bags.

She was oblivious that she had caused another person to feel her intentional collision. Don’t get me wrong. I was not knocked off my feet or hurt in any way. But a polite word would have been what a civilized person would instinctively uttered. Then, as soon as the first rude woman continued on her oblivious way, a second woman, probably the friend of the first woman, repeated what her friend did.  A bystander saw what I experienced, winced in sympathy and shook his head. After the impact with the second woman, I stopped and turned around to confront the second rude woman about her intentionally shoving what appeared as an unstable man who was moving slower than these women thought was acceptable, but she had also scurried off on her rude way.

Over the course of the rest of my two-hour trip each way, I had to experience rush hour rudeness that I never realized was so prevalent. I guess you have to look and act feeble to experience. Two people actually kicked my cane to get it out of their way. I won’t bore you with more details, but rush hour apparently turns some New Yorkers into thugs. And, I’m afraid that based on my limited survey that day, violation is heavily skewed to the female population. This makes it impossible to fight back of course.

Back to my bad attitude. By the end of my return trip, I was prepared to meet anyone who tested me with a pushback at least three times as hard as anyone shoved into me, gender notwithstanding. Fortunately, being prepared to do something and doing something are distinctly separate actions. So despite my bad attitude, and my Parkinson’s, I chose to experience the rudeness of rush-hour as a spectator. At least for now. Deep down inside, I know that the two rude women are not typical New Yorkers, (They are probably French tourists.) and except during rush-hour, may not even be rude.

That may be another benefit of Parkinson’s. The ability for PD patients to see the world around us in a way others may not be able to.  We remember our pre-PD  world as interesting, enjoyable and full of people we admire and love. Along with a few rude people who snuck in.  And with Parkinson’s, the world is still interesting, enjoyable and filled with the same people. Only you appreciate everything more. Both the old life and the challenge of each new day.

The point is, don’t give in to Parkinson’s. Don’t let your health condition change who you are and the way you see the world.  Enjoy your life and the world and people around you. To live any other way means Parkinson’s has won the battle. 

Enjoy the photo of Kaaterskill Falls in upstate New York and visit NYUrbanimages.com and Instagram #LakeCharg .

Thursday, October 18, 2018

My photography obsession and Parkinson's


I have been talking and writing about my absolute obsession with photography which started shortly after I exhibited Parkinson’s disease symptoms in late 2004. It took a few years before my doctors realized that it was just Parkinson’s disease and not ALS, a brain tumor or a spinal tumor. As unpleasant as Parkinson’s tends to be (actually, it sucks), it is not remotely like those other things. Shit, I get nervous just writing about them. (That’s why I’m not going to.) Compared to them, Parkinson’s is a walk in the  park. (Carefully though. A symptom of Parkinson’s is stubbing one’s toe and tripping.)  I think the Parkinson’s diagnosis came in 2008, after the obsession started. So I want to think and write about this photography obsession because in doing so, I hope to eventually prove or disprove (to myself. No one else cares.) it all stems from Parkinson ‘s. As of today, it is what I believe.

 What I want to explain is when I place my camera viewfinder to my eye, we become one. Can’t find any other words to describe what happens. We become one.  (“I am my camera” comes close though.)

When that happens, I can feel the image as well as see it. It makes me feel good, no matter what the image is. If I see and feel it in the viewfinder, it makes me feel good. With that, the image becomes an experience that I must share. I want others to share my experience, and I just assume others will want to do so. I realize that this sounds presumptuous or even arrogant. But I really appreciate it if you enjoy the image. I also realize that very few photographs are liked by everyone who sees them. Taste in photography is not universal.  So even if one of my photos does not grab you as an experience, I hope you can put up with my obsession and understand where it comes from. (I think.)

It’s okay if that isn’t possible, I can deal with it. There is a photo below. Be kind.
NYUrbanimages.com
John Poblocki

Monday, October 15, 2018

At some point, you're going to need physical therapy.

I have a physical therapist come to my house twice a week for an hour each time and it's covered by my insurance and Medicare. I have a co-pay, but what I get from this service is amazingly helpful. The PT started for pain in my neck (for which I had 36 visits at two facilities and which were not helpful.) and has expanded to include managing Parkinson's symptoms. My assigned therapist is absolutely the smartest, most pleasant, professional and attentive of the many I have used over the years, and I have  the convenience of not having to go to a facility only to be ignored while the therapists stand around and talk about everything except your treatment. (Note to therapists: Your clients hear everything you talk about.) Not all physical therapist facilities are like that. Some are, some aren't. But when you qualify for and receive home visit physical therapy, you get complete attention for a full hour, not the ten minutes you learn to expect when you go to a facility. And you don't have to listen to the latest gossip from the staff of a facility.

Here is a photo from a recent shoot. See more at my photography website.

NYUrbanimages.com


Sunday, October 14, 2018

I'm fine.

Why does everyone I know ask how I'm feeling in such a serious way? I appreciate your asking but do I really look that shitty? Am I just getting old... like everyone else? Or do I look worse than everyone else? Look. I feel fine. Not great, but fine. I haven't felt great since I was 22. Since then I have been the same, which is fine. And I still have had Parkinson's since the fall of 2004.

Oh, I get it! Since I started writing this blog, almost everyone I know now knows I have Parkinson's. That was not my purpose. It was and remains my purpose to help others with my approach to this disease which is to not give in to it.. Ever.

Most of the time I just ignore it. Or get pissed off at it. As an example, tonight I worked out in my gym for 2 hours as hard as anyone my age could. It's well after midnight, just posted a couple of photos on Instagram (LakeCharg) and I'm still feeling fine. Not great, but fine.

By the way, I hope you are fine also. Maybe even great. And thanks for asking. It makes me feel fine.

Monday, October 8, 2018

Tai Chi on sale


If you or someone you know has Parkinson’s and is having difficulty getting started with anything that sounds like, looks like, smells like or rhymes with exercise, despite my constant harangues and diatribes in some of my bloggings, I have an opportunity to help get you, him or her moving and possibly enjoying it. No, I’m not kidding. Read on!

Go to www.TryGreatCourses.com and find the “Essentials of Tai Chi and Qigong.” This course offered on line via streaming or with a DVD format. The latter does not require a computer, just that thing you use to watch movies on your TV. Wait, it gets better. There is an amazing sale for this Tai Chi instruction of several hours for $25 for streaming on your PC or $35 for the DVD format marked down from $270! My lucky day since I had considered signing up for a local in-person Tai Chi class for $450 for three months.

I tried it earlier today and I am more that satisfied that I invested $25 very wisely. What I want is to improve my sense of balance and learn how to relax through the meditative aspects of these ancient Chinese movements.

The people behind this and dozens of other programs also offer similar courses in everything from Building Great Sentences (I know what you are thinking about my sentences. Just stop it!) to Great Ideas of Philosophy and  The Joy of Mathematics. They partner with other people like National Geographic and The Culinary Institute of America.

There is one hitch. The sale price of $25 or $35 (Regular price is $270.) is only good until October 25th. To be honest with you, I have very limited expectations that anyone with Parkinson’s who is not exercising to help themselves have a better life, will try Tai Chi. I’m trying it at the recommendation of my new Parkinson’s doctor at Columbia University Hospital Neurology Department.

Ask your Parkinson’s doctor if he or she recommends Tai Chi. If they don’t know about it, you need to find a new doctor.

Give it a shot. You’ve got nothing to lose except feeling shitty.
Speaking of shots, here is a pretty nice one of the Whitestone Bridge linking Queens and The Bronx in New York City. Yes, I have Parkinson's. It does not keep me from what I love to do. See more about my photography at NYUrbanimages.com .

Friday, October 5, 2018

Okay. I'M BACK!


So I took a couple of days off. If you were thinking Parkinson’s had done me in, think again. I admit that I am going through some changes. This I expected when I moved to a new medical practice (that’s where doctors go to practice on real live patients.) Apologies to my doctor relatives and friends. But no apologies to neurologists who are not trained as Parkinson’s experts but are masquerading  as something they are not and pretending they can treat Parkinson’s diseased people. Shame on you.. Okay.so I got a little more frustration off my chest.  Can I post more frustration on fake Parkinson’s doctors tomorrow for anyone? Thank you in advance.

To keep you informed, know that my physical therapist is so helpful and caring. She is an expert because she is trained to treat Parkinson’s patients. She visits me at home twice a week and has really helped me with so many issues. If you don’t have a physical therapist, you may be wasting so much time and energy. I know because I wasted so much of my own time and energy. Here is a list of things she has or will help me with or locate other resources as I need them.

1.       Review exercise program and make changes to avoid injury and help overuse injuries to heal.

2.       Provide physical manipulation to neck, shoulder and back to help heal some muscular strains and pain.

3.       Provide walking and balance training to eliminate common PD problems with these functions.

4.       Recommend other programs like Tai Chi and boxing.

I like her a lot and I want to make her an expert with those symptoms that affect me so that she can use this expertise to help others. (Consider it a gift. You’re welcome.) She thinks I am quite knowledgeable about exercise (50 years of exercise will make you an expert also. Try it.) and hope to help her expand her knowledge of exercise and its impact on PD.

She already knows that exercise in the best way to fight PD. If you have PD and you do not exercise in some format (that includes sitting in a wheelchair and doing what you can, because that whatever you can will help. You might even get rid of that wheelchair. It wouldn't be the first time it happened.)



There are very few reasons not to exercise. Chances are whatever excuse you are using isn’t a good one.