If I’m going to preach to you and others with and without
Parkinson’s disease about taking responsibility for an aggressive approach to
fighting for your health, in my case the encroachment of PD symptoms, in your
case maybe whatever is out to get you, then you expect me to practice what I preach.
Right?
Well I’m on it. It seems to be time to take another step. While
I have been pretty satisfied with my current PD doctor, he is a single
practitioner who is very good at designing the just right balance of
medications but is totally focused there. Because of the effectiveness of my
intense physical fitness program with reversing almost all symptoms as they
tried to occur, I have been able to minimize the impact of Parkinson’s on my daily
life so far
But now, before things get beyond my control, I want a more
balanced program that attacks PD before it knows I’m coming at it. So I have been looking for a comprehensive
Parkinson’s medical group. to help me continue to kick the shit out of PD. In this search I have noticed the growth of “centers
of excellence” (COE) , a designation by the Parkinson’s Disease Institute, for
the treatment of Parkinson’s and movement disorders.
These COE’s encompass
all or most of the specialties I am looking to have available when and if I
need them including Parkinson’s neurology
expertise,, physical therapy, physical training, speech pathology, , neuropsychology,
diet and genetic analysis and treatment trials. While I am pleased to find
this resource in my backyard, New York City, the bigger question is why does it
continue to be incumbent on a Parkinson’s
disease person to uncover this type of help? With all due respect to qualified
Parkinson’s doctors and those organizations raising funds supporting PD research,
clinical trials, etc., there is a communication problem that needs addressing
and it requires focusing on those practitioners not qualified to treat Parkinson’s
patients.
Why do so many general practitioner doctors and general
neurologists untrained in the treatment of Parkinson’s ignore the needs of
their Parkinson’s afflicted patients and continue to provide inadequate medical
advice. The more I think about this, the more pissed off I get. Bear with me
while I try to refocus away from anger.
Okay. I’m refocused. (Not really. But I tried.)
I’m not bashful when it comes to fighting to make sure I get
the best chance of living as well as I can. I have stuck an elbow here and
there as necessary. As a result, I have nothing to complain about when it
comes to PD. Not so for so many others. I don’t even want to think about how
many PD people sit in nursing homes when this may not be necessary at all. If
it is more than zero, it’s way too many. I am happy to share what I learn in my
daily PD battle. Please help me by
sharing my posts and following this blog. You never know whom you might help
and how that simple act may pay itself forward.
But at this moment, I’m still pissed off.
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